Wednesday, September 16, 2009

Birthday parties.

Why must every birthday party pizza, cake and ice cream? Talk about making a child feeling excluded. We dealt with our first birthday since the diagnosis nearly three weeks ago. A cousin, sort of, was turning 3 years old. They had cakes (three of them!) a huge jug of chocolate chip ice cream (made with HFCS of course) and pizza (all red sauce. If it were white sauce or olive oil she could have at least eaten the cheese off it).
I felt awful for poor Ciara but I suppose it is only the adults that view her as poor Ciara. She happily had some of the salad that was provided for the adults. She munched a bag of potato chips. I brought along an individual sized Hagan Daz ice cream for her (hey, the dietitian said said no candy. Nothing about ice cream ;) ) She even picked off some sausage from a piece of pizza. She was happy.
There is another one tonight but I won't be there. Daddy gets to take her to the party tonight while I volunteer at a local therapeutic riding center.

So, the drastic personality change I was kind of expecting has not occurred. Ciara sleeps through the night now. That is really nice. The tantrums are still ever present. She had another last because I put bubbles in that bath. That followed the tantrum that it was "not night time" it was "awake time" to which I suppose she was technically correct but if you are going to spend yet another 15 minutes on the floor throwing a tantrum that someone put both tents in the same bag and not their separate bags then it is "night time" for you. Sigh. It was one of the times I wish my child had come with a hand book that would tell me how she want the world run since I am obviously screwing it up.

1 comment:

  1. It has been nearly a year since your last post so I'm not sure if you'll get this message...

    I am curious to know how things are going with Ciara. My daughter, 4-years-old, as been diagnosed with FructMal and I would love to find a support group of mamas going through the same thing I am. If you get this message - I'd LOVE to hear from you.

    Thank you,
    Erin Cox

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